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Lessons Learned

By sharing our experience, I hope to provide ideas on spending quality time with a bedridden baby and making the life of a deprived child better, one day at a time. I hope that this will also become a space for wisdom of other heart moms and their victories.
Step #2: How I weaned my daughter off her feeding tube - INDUCING HUNGER
Lessons Learned

Step #2: How I weaned my daughter off her feeding tube - INDUCING HUNGER

Emanuela was born with a single ventricle heart, transposition of great arteries and stenosis of pulmonary arteries. Like almost every other baby with a congenital heart defect we have seen during seven months of her hospitalization, she was given a feeding tube down her nose at the very beginning. I
30 Jun 2022 2 min read
Step #1: How I weaned my daughter off her feeding tube - OROFACIAL MASSAGE
Lessons Learned

Step #1: How I weaned my daughter off her feeding tube - OROFACIAL MASSAGE

As advised and taught in the hospital, the first step was what they called orofacial stimulation. The idea behind it is massaging the child's face in a sequence of moves, just before the feed. It is supposed to trigger the primal instincts of opening the mouth, sucking and
28 Jun 2022 1 min read
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